Review (July 2025)

Nord, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.

13.71M

Estimated Revenue

1.71M

Website Visitors

4/5

Trustpilot Score

What do we know about National Organization for Rare Disorders?

Estimated Revenue (2020)

$13.71M

Total Employees

140

Founded

1983

Industry

Nonprofit Organization Management

Location

Danbury, United States

About

National Organization for Rare Disorders: NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.

Social Links

Alexa Ranking: 47463

What is National Organization for Rare Disorders's Revenue?

National Organization for Rare Disorders's estimated revenue for 2024 is $13.71M.

What does National Organization for Rare Disorders do?

The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases. NORD is the official sponsor of Rare Disease Day in the U.S., an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseaseday.us. To learn more please visit the NORD website at www.rarediseases.org. You can also follow NORD on Twitter at @RareDiseases.

What are the monthly traffic metrics for Rarediseases?

6/mo Traffic Growth

-9.40%

All Time Traffic Growth

Create Free Account

Monthly Hits

2M

Time on Site

0.8Mins

Bounce Rate

74%

How fast is Rarediseases growing?

Rarediseases has grown by 16.2% in the last 6 months according to SimilarWeb.

How do people interact with Rarediseases?

Last month, Rarediseases received 2M visitors who spent an average of 0.8 minutes on the website and visited 1.0 different pages per session. Overall, 74% of people bounce on the first visit.

How do people find Rarediseases?

173.3k people (10%) visit Rarediseases directly. 1.5M (88%) people search for them in Google. Whereas, 7.6k (0%) discover Rarediseases through Facebook, Reddit, and YouTube. 1.1k (0%) visitors come from Rarediseases's email newsletters. Finally, 0 (0.0%) people come from affiliates and or paid referrals.

Who uses Rarediseases?

Rarediseases's top market is the United States and they receive 918k (53.5%) people.
Then the 2nd is United Kingdom with 154.2k (9.0%).
The 3rd is is Canada with 123k (7.2%).

Traffic Growth (last 6 months)

All Traffic Source

Country Share

Traffic Growth (last 12 months)

See 12/mo Traffic Stats

What are Rarediseases's ads on Google?

Google Ads

Make a Charitable Donation Now - Help Family with Rare Diseases‎

https://rarediseases.org/

NORD helps patients with rare diseases access life-saving treatment and services

Keyword: rarediseases.org

Make a Charitable Donation Now - Help Family with Rare Diseases‎

https://rarediseases.org/

NORD helps patients with rare diseases access life-saving treatment and services

Keyword: rare disease

Make a Charitable Donation Now - Help Family with Rare Diseases‎

https://rarediseases.org/

NORD helps patients with rare diseases access life-saving treatment and services

Keyword: rare diseases in the us

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